Native Hawaiian Study

Native Hawaiian Study

Let’s talk Story.  How do you feel about genetic services and breast cancer?  Now enrolling Native Hawaiian breast cancer survivors willing to be interviewed about their experiences and feelings about using genetic services related to breast cancer care and breast cancer risks.

CLICK HERE to view enrollment flyer

Aloha,

My name is Nicole Choy. I was born and raised on Oahu, graduated from Maryknoll High
School, and I am currently studying to get my master’s degree in genetic counseling from the
Keck Graduate Institute in Claremont, California. I want to invite you to be a part of my research
project. The goal of my project is to learn about the experiences and feelings that Native
Hawaiian breast cancer survivors have about genetic counseling and genetic testing. I am
inviting you to be in this study because you are a Hawaiian woman who has been diagnosed
with breast cancer at least five years ago.

This project is part of my graduation requirements to complete my master’s degree. But in
addition to that, the results of this study may help doctors understand what Native Hawaiian
women think about genetic counseling and genetic testing services. Genetic counseling and
genetic testing have the potential to tell us a lot about cancer. Information we learn from
genetic counseling and genetic testing may even lead to changes in how we look for or treat the
disease. This study intends to point out ways that doctors can educate their Hawaiian patients
about using these services and how they can access them.

If you decide to participate in this study, I will contact you to set up a time for an interview
either over the phone or video-conferencing. This interview will take about an hour to an hour
and a half. At the time of our meeting, I will ask you to fill out a brief survey with questions
about yourself and your breast cancer history. During the interview, I will be asking about your
experience with genetic counseling and genetic testing, and what your feelings are about using
those services. I would like to record our conversations so that I can accurately write down
what you share with me. You will be compensated $25 for your time.

Remember, this is entirely up to you. You can choose to be in the study, and you can withdraw
from the study at any time. If you’d like to participate or have any questions about the study,
please email or contact me at (808) 497-2192 or nchoy19@students.kgi.edu.

Thank you very much.
Sincerely,
Nicole Choy